love this one
Sunday, December 28, 2008
Thursday, December 18, 2008
Monday, December 15, 2008
I had the strangest dream in which I had intravenous needles in my wrist but they did not seem to be attached and when I took them out a beautiful plant emerged from the area. It was a very leafy plant. and then I was afraid I would get to be fired from a job I had just got and my daughter seemed to be somehow connected. Weird. the graphics were very artistic and realistic.
Saturday, December 6, 2008
Dr. Andrew Mckay did not feel that an angiogram was necessary and he would let Dr. Kaita know about his findings. I had an ultrasound on December 4th and a followup with Dr. Kaita will be on January 9th. I will be asking him alot of questions about the condition of my liver -the liver biopsy and the ct scan do not have the same assessment.
Anyway the good news if you look at it that way is that GWL approved my disability benefits past the two year own occupation into the any occupation stage. That puts my mind at rest after
several weeks of anxiety and some nightmares.
A horrible fight with my daughter has really bothered me a great deal.
Anyway the good news if you look at it that way is that GWL approved my disability benefits past the two year own occupation into the any occupation stage. That puts my mind at rest after
several weeks of anxiety and some nightmares.
A horrible fight with my daughter has really bothered me a great deal.
Friday, November 14, 2008
more testing
Dr. Kaita and his very pleasant assistant said there is an indication of a malformation in my liver. This is causing the fistula. In about four weeks Dr. Mckay will do surgery to look further and to repair it.Plus I need another ultrasound.
Monday, November 10, 2008
Tuesday, October 28, 2008
How am I feeling
I have some of the same issues I had when I was on medication such as tiredness that does not make sense, forgetfulness, not remembering something I said a few moments before, and when I use the computer I feel unable to complete my original agenda.Nightmares are an added feature.
My appetite has improved.
GWL is reviewing my claim because it will move into stage 2 beyond your own occupation to any occupation but within my range of background and education and pay 50% of my gross monthly wages pre-disability( if hypothetically I could return to work) so Dr. Kaita is sending in necessary test results and I will get copies. My Canada Life has been renewed.My cpp disability continues.
My appetite has improved.
GWL is reviewing my claim because it will move into stage 2 beyond your own occupation to any occupation but within my range of background and education and pay 50% of my gross monthly wages pre-disability( if hypothetically I could return to work) so Dr. Kaita is sending in necessary test results and I will get copies. My Canada Life has been renewed.My cpp disability continues.
Monday, September 29, 2008
Beyond the Epidemics.
I went to the conference and it was a positive experience to get away and to do something different and useful.It was alot to absorb in two days. The first speaker Walter really got my attention. He being in a musical field to becoming a social worker had made a difference in his life from being in the arts community to becoming a social worker.Because I had not been at a conference like that before I had very high expectations and most speakers met my expectation. More later.
Friday, September 19, 2008
ct scan
On September 23rd I am having a ct scan - for the expert technicians to evaluate my liver in greater detail and perhaps to deal with a liver fistula. Then on the next evening I am travelling to Regina to attend a conference called Beyond the Epidemics.It will be a good experience for me.The Hep c support group is paying for the expenses of the trip.
When I and other people with chronic health conditions feel discouraged about not working because of our disability I feel encouraged by this information I found on the internet. It is far too complicated to go back to work when I have other related conditions as well namely, vasculitis, cryoglobulenimia,(did I spell that right), a liver fistula-we think, and dry skin, and fatigue and lack of concentration.
“the test of total disability is satisfied when the circumstances are such that a reasonable man would recognize that he should not engage in certain activity even though he literally is not physically unable to do so. In other words, total disability does not mean absolute physical inability to transact any kind of business pertaining to one’s occupation, but rather there is a total disability if the insured’s injuries are such that common care and prudence require him to desist from his business or occupation in order to effectuate a cure; hence, if the condition of the insured is such that in order to affect a cure or prolongation of life
common care and prudence will require that he ceases work, he is totally disabled within the meaning of health or accident insurance policies.”
p.s. I am searching for the name of the judge who said this.THIS IS FROM SUCHAROV V. PAUL REVERE - SUPREME COURT OF CANADA
When I and other people with chronic health conditions feel discouraged about not working because of our disability I feel encouraged by this information I found on the internet. It is far too complicated to go back to work when I have other related conditions as well namely, vasculitis, cryoglobulenimia,(did I spell that right), a liver fistula-we think, and dry skin, and fatigue and lack of concentration.
“the test of total disability is satisfied when the circumstances are such that a reasonable man would recognize that he should not engage in certain activity even though he literally is not physically unable to do so. In other words, total disability does not mean absolute physical inability to transact any kind of business pertaining to one’s occupation, but rather there is a total disability if the insured’s injuries are such that common care and prudence require him to desist from his business or occupation in order to effectuate a cure; hence, if the condition of the insured is such that in order to affect a cure or prolongation of life
common care and prudence will require that he ceases work, he is totally disabled within the meaning of health or accident insurance policies.”
p.s. I am searching for the name of the judge who said this.THIS IS FROM SUCHAROV V. PAUL REVERE - SUPREME COURT OF CANADA
Sunday, August 24, 2008
Thursday, August 21, 2008
more testing
My doctor tells me that the mri did not provide quite enough information so now I will be having an angiogram and perhaps a repair of a fistula at the same time-so I am continuing to see lots of dr.Plus I am also having catarac surgery very soon.
Sunday, August 17, 2008
Seeing Dr. Kaita
Dr. Kaita will be telling me the results of the MRI tomorrow. Then Deidre will be finally home after her long vacation in Nova Scotia.I am so happy to be home from B.C. it is great to be home and see all my cats and the hamsters and of course My family David and the grandchildren. I saw Cora briefly.
Purple
The richness of red
The royalty of blue
I see it on the close fitting gloves of the lab technician
I see it faintly expressed on the his professional collar
I see it brightly papering around the fuse bottle
I see a light touch of purple on the tip of the needle container releasing my blood into the capsule
My blood is going on its journey for its platelet test
My lacy pattern on my skin reveals tiny purple capillaries stretching spider like along my legs
The blood test shouts out the tale of cryoglobulins
I say, “Cry,” and glob away from me
I will not view the purple stains and shapes bruising my legs
And what of the faded purple spleen and the magenta colored liver?
Purple
The richness of red
The royalty of blue
I see it on the close fitting gloves of the lab technician
I see it faintly expressed on the his professional collar
I see it brightly papering around the fuse bottle
I see a light touch of purple on the tip of the needle container releasing my blood into the capsule
My blood is going on its journey for its platelet test
My lacy pattern on my skin reveals tiny purple capillaries stretching spider like along my legs
The blood test shouts out the tale of cryoglobulins
I say, “Cry,” and glob away from me
I will not view the purple stains and shapes bruising my legs
And what of the faded purple spleen and the magenta colored liver?
Tuesday, August 5, 2008
Saturday, August 2, 2008
appointment
My appointment at cancer care was mostly about an investigation concerning why my patelets and white blood cells are so low. are they hiding in enlarged spleen. So they will be reviewing my files form the other doctors and maybe doing a bone marrow biopsy.
Saturday, July 26, 2008
Friday, July 11, 2008
WHAT???
Now I have to see a hemotologist at Cancer Care. they are doing more blood work on me. Even hearing the word cancer is more scary than hearing Hepatitis C.The appointment is on August 1st at cancer care around 3:00 P.M.
Tuesday, July 8, 2008
cry, ra, mri
My dermatologist is continuing to take more tests regarding the cryoglobulins. He said that the rhuematoid arthritis is called a marker-I must ask him to explain that to me more clearly. He felt that I don't have to see a hemotologist as yet. so the next event is the MRI.
blueness revisited
Instead of painting I have been writing lately. At least I am experiencing a reflective and creative definition of my time. I bought a cheap journal at a Dollar Store. I am writing anecdotes and poetry and writing down a document of my expenses.
My sister should be home from Ireland and Malta.
Monday, June 30, 2008
virus news
Although I did not see Sally we talked on the phone and she said that my virus is still showing undetectable-very good news. I have to make sure that I meet my appointment with the dermatologist to find out what is happening with my cryoglobulins and vasculitis and arthritis ???!!!So although my liver is at a serious stage of damage the virus at least will not be destroying it bit by bit.
I thought very clearly in my mind before Sally called me that the virus was no longer about because my feet are no longer swelling.
I thought very clearly in my mind before Sally called me that the virus was no longer about because my feet are no longer swelling.
Tuesday, June 24, 2008
Wednesday, June 18, 2008
Tuesday, June 17, 2008
not nice ditto double double
I had my appointment with the dermatologist and I was told that I had tested positive for cryoglobulins and for rhuematoid arthritis-that last one came out of nowhere's land.He called my hepatologist and he and the nurse and Dr. Kaita decided to retest me for the hep c virus and not wait until September.a skin biopsy was taken, about seven tubes of blood and a urine test-and now I am pretty sure the virus has arisen.Two years of treatment -what the heck-slowed down the progress of the liver disease but we will know more in a few weeks.
the whole thing is pretty scary.
One thing I know-if I ever had any doubts about receiving disability cheques those doubts have been eradicated.
the whole thing is pretty scary.
One thing I know-if I ever had any doubts about receiving disability cheques those doubts have been eradicated.
Sunday, June 15, 2008
NOT NICE
This is my leg-the red spots at first are qite bumpy almost like large pimples, then they appear to flatten and become itchy and later turn to bruises and fade.
Thursday, June 12, 2008
How Am I feeling today
-have very bad red marks on my legs
-large, at first they are bright red, then they become purple and brown and fade away
-I wanted to see my dermatologist Dr. Silver right away but I am scheduled to see him on Monday
-the marks may or may not disappear by then
-could be cryo or pupura
-did the virus return?
-or did the virus ever disappear
-it is all very stressful
-large, at first they are bright red, then they become purple and brown and fade away
-I wanted to see my dermatologist Dr. Silver right away but I am scheduled to see him on Monday
-the marks may or may not disappear by then
-could be cryo or pupura
-did the virus return?
-or did the virus ever disappear
-it is all very stressful
Tuesday, June 10, 2008
Medical Services Health Information Appointments Education and Research Jobs About
Arteriovenous (AV) fistula: What is it?
What is an arteriovenous fistula?
- Maureen / Pennsylvania
Mayo Clinic hypertension specialist Sheldon Sheps, M.D., and colleagues answer select questions from readers.
Answer
CLICK TO ENLARGE
A-V fistula
An arteriovenous (AV) fistula is an abnormal passageway between an artery and a vein. Although it most often occurs in the legs or arms, an AV fistula can occur anywhere in the body, including the brain. An AV fistula may also be created surgically to provide access for hemodialysis in people with end-stage kidney failure.
Normally, your blood flows from arteries through capillaries and back to your heart in veins. When an AV fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries. If the volume of diverted blood flow is large, tissues downstream receive less blood supply. In addition, heart failure may occur due to the increased volume of blood returned to the heart.
A doctor may suspect an AV fistula by an abnormal sound (bruit) heard over the artery with a stethoscope. The sound is due to turbulent blood flow between the artery and the vein. Small fistulas following injury sometimes close without treatment. But larger fistulas usually require treatment, which may include:
§ Endovascular coils inserted into the fistula to close it
§ Surgery to block the abnormal channel
MORE ON THIS TOPIC
§ Carotid bruit: What causes it?
Arteriovenous (AV) fistula: What is it?
What is an arteriovenous fistula?
- Maureen / Pennsylvania
Mayo Clinic hypertension specialist Sheldon Sheps, M.D., and colleagues answer select questions from readers.
Answer
CLICK TO ENLARGE
A-V fistula
An arteriovenous (AV) fistula is an abnormal passageway between an artery and a vein. Although it most often occurs in the legs or arms, an AV fistula can occur anywhere in the body, including the brain. An AV fistula may also be created surgically to provide access for hemodialysis in people with end-stage kidney failure.
Normally, your blood flows from arteries through capillaries and back to your heart in veins. When an AV fistula is present, blood flows directly from an artery into a vein, bypassing the capillaries. If the volume of diverted blood flow is large, tissues downstream receive less blood supply. In addition, heart failure may occur due to the increased volume of blood returned to the heart.
A doctor may suspect an AV fistula by an abnormal sound (bruit) heard over the artery with a stethoscope. The sound is due to turbulent blood flow between the artery and the vein. Small fistulas following injury sometimes close without treatment. But larger fistulas usually require treatment, which may include:
§ Endovascular coils inserted into the fistula to close it
§ Surgery to block the abnormal channel
§ Carotid bruit: What causes it?
mri needed
Dr. Kaita said that from my ultrasound I need to have a MRI There is an indication of a fistula which is a flow of blood from a vein to an artery without going through a capiliary first. He didn't really want to know about the diarreah as this seems to be something to tell my family doctor. I am unsure about the date of the MRI. They will send me an appointment time.
I REMEMBER HEARING A SWISHING SOUND DURING MY ULTRASOUND .that sound is called a bruit.
I REMEMBER HEARING A SWISHING SOUND DURING MY ULTRASOUND .that sound is called a bruit.
Monday, June 9, 2008
Wednesday, June 4, 2008
HOW AM I FEELING
-YESTERDAY WAS STRANGE
-diarreah about ten times in the morning-ugly and disgusting
-I also have another appointment with my dermatologist re. follow up on him giving me a blood test
-somewhat mysterious
-have to run
-diarreah about ten times in the morning-ugly and disgusting
-I also have another appointment with my dermatologist re. follow up on him giving me a blood test
-somewhat mysterious
-have to run
Thursday, May 29, 2008
How am I feeling?
-had a very bad nightmare last night
-slept walked to my daughter's room and began talking to her and woke up
-much better appetite
-always wake up too earley-5:22 or 6:30 A.M.
-slept walked to my daughter's room and began talking to her and woke up
-much better appetite
-always wake up too earley-5:22 or 6:30 A.M.
Sunday, May 25, 2008
How am I feeling?
-some memory issues
-lose my laundry card or I think I have lost it and I haven't
-think my keys are in the laundry room but they are not
-forget what t.v. show I am seeing when I leave the room
-feeling frustrated when these things happen several times per week
-will see Dr. Kaita on June 9th for a post treatment assesment apointment
-good news-my feet no longer swelling
-lose my laundry card or I think I have lost it and I haven't
-think my keys are in the laundry room but they are not
-forget what t.v. show I am seeing when I leave the room
-feeling frustrated when these things happen several times per week
-will see Dr. Kaita on June 9th for a post treatment assesment apointment
-good news-my feet no longer swelling
Friday, May 16, 2008
Thursday, May 15, 2008
how do I feel
-appetite much better
-put on six pounds
-have been tested for cryoglobulinimia
-soreness in legs and arms
-fell on the floor of the bus yesterday when a pedestrian jay walked in front of a bus
and the driver had to stop suddenly
-o.k. but a scary experience
-rash on my face is not liver related
-put on six pounds
-have been tested for cryoglobulinimia
-soreness in legs and arms
-fell on the floor of the bus yesterday when a pedestrian jay walked in front of a bus
and the driver had to stop suddenly
-o.k. but a scary experience
-rash on my face is not liver related
Thursday, May 8, 2008
I WAS GETTING MY ULTRASOUND TEST DONE ON MY ABDOMEN AND WHEN THE LADY LEFT THE ROOM I SAT UP AND LOOKED AT THE IMAGE-they have a colour doppler and my liver looked totaly disgusting and took my light heartedness away as I left the hospital. Dr. K will give me an assessment on June 9th, 08.
-lots of bumps
-lots of bumps
Wednesday, May 7, 2008
how am I feeling
-quite tired
-soreness in legs when I am on my feet alot
-red spots on legs have mostly faded except for the tiny ones
-irritating rash on forehead which has been with me over a year
-some nightmares
-always wake up at 6:30 A.M, on the dot every morning
-
-soreness in legs when I am on my feet alot
-red spots on legs have mostly faded except for the tiny ones
-irritating rash on forehead which has been with me over a year
-some nightmares
-always wake up at 6:30 A.M, on the dot every morning
-
Thursday, May 1, 2008
Tuesday, April 29, 2008
Sunday, April 27, 2008
Red stuff
I certainly have an appetite surge and I finish a larger volume of food and I even think about the taste and texture of food which I could not do or wish to do during meds. I continue to have small red marks like red points on my legs, larger spots, and spider angioma- I think. I see a dermatologist on May 12th, I get an ultrasound on May 8th and I see Dr. Kaita on June 9th.
Saturday, April 19, 2008
how I am feeling these days
The red marks on my legs fade during the night and turn to bruises-they subside if I am not walking too much. If I walk a fair amount they cover my legs and there is swelling on the ankle.
We had a very nice family time at aunty Bunny's memorial. On our side of the family Lyn, David and Deidre came. Harvey Dann came. Paul and Nancy came.All the others would be Otto connections. Paul Otto said a very thoughtful eulogy-very well expressed and very defining of Bunny's generosity, kindness, effeciency, a bit of humour added. Lyn said a few words as well.
My gwl cheques are arriving in a timely manner- very good news.
We had a very nice family time at aunty Bunny's memorial. On our side of the family Lyn, David and Deidre came. Harvey Dann came. Paul and Nancy came.All the others would be Otto connections. Paul Otto said a very thoughtful eulogy-very well expressed and very defining of Bunny's generosity, kindness, effeciency, a bit of humour added. Lyn said a few words as well.
My gwl cheques are arriving in a timely manner- very good news.
Thursday, April 17, 2008
grandma and kayden
this is when Kayden was quite young now he is 16 months old and enjoying walking about with confidence
Saturday, April 12, 2008
Tuesday, April 8, 2008
I NEVER DRINK ALCOHOL SO THAT IS DEFINITELY IN MY FAVOUR. I have never really been an enthusastic cook and food was never on my list of top interests and priorities but I keep telling myself to improve my eating habits. this article might get me or others motivated.
DIET AND HEPATITIS C
WHAT IS THE RELATIONSHIP BETWEEN DIET AND HEPATITIS C ?
Hepatitis C is a virus that infects the liver. Up to 85% of people exposed to this virus develop chronic liver disease. Progression to cirrhosis { irreversible scarring of the liver } occurs in about 25% of individuals. While not as yet totally defined, many factors influence the rate of disease progression. Diet likely plays an important role in this process, as all foods and beverages that we ingest must pass through the liver to be metabolized.
ALCOHOL AND HEPATITIS C
Alcohol is a potent toxin to the liver. Excessive intake can lead to cirrhosis and its complications, including liver cancer. Heavy drinkers are not the only individuals at risk for liver disease, as damage can occur in even some moderate "social drinkers". The hepatitis C virus has frequently been isolated from patients with alcoholic liver disease. In fact, these patients have been found to have a higher incidence of severe liver damage, cirrhosis, and a decreased lifespan, when compared to individuals without the virus. It is suggested that the combination of alcohol and hepatitis C accelerates the progression of liver disease. The consensus statement concerning management of hepatitis C released March 1997 from the National Institutes of Health, further warned about the dangers of excessive alcohol use in patients with hepatitis C. These recommendations stressed limitation of alcohol use to no more than one drink per day. Therefore, patients with hepatitis C would be unwise to drink alcohol in excess, and total avoidance of all alcohol intake is recommended .
IRON AND HEPATITIS C
The liver plays an important role in the metabolism of iron since it is the primary organ in the body that stores this metal. The average American diet contains about 10- 20 mg of iron. Only about 10% of this iron is eliminated from the body. Patients with chronic
hepatitis C sometimes have difficulty excreting iron from the body. This can result in an
overload of iron in the liver, blood, and other organs. Excess iron can be very damaging to the liver. Studies suggest that high iron levels reduce the response rate of patients with hepatitis C to interferon. Thus, patients with chronic hepatitis C whose serum iron level is elevated, or who have cirrhosis, should avoid taking iron supplementation. In addition, one should restrict the amounts of iron rich foods in their diet, such as red meats, liver, and cereals fortified with iron, and should avoid cooking with iron coated utensils.
FAT AND HEPATITIS C
Overweight individuals are often found to have abnormalities related to the liver . Examination of liver specimens may display a spectrum of abnormalities ranging from fatty deposits in the liver,[ steatosis], to fatty inflammation [ fatty hepatitis], or even fatty cirrhosis. This condition is called Nonalcoholic Steatohepatitis [ NASH ]. It occurs predominantly in middle-aged obese women with diabetes mellitus and hypertriglyceridemia [excess fat in the blood]. However, this disease may also occur in individuals of normal weight, without other associated diseases, and can also affect men. The presence of fat in the liver can cause the liver to become enlarged and may result in elevations in liver related blood work { liver function tests [LFT's] }. The addition of NASH in patients with hepatitis C may worsen liver related blood work and physical exam. This may confuse interpretation of results and diagnosis. Controlled studies need to be done to determine if the addition of this disease worsens the prognosis of patients with underlying chronic hepatitis C. In overweight patients with a fatty liver who subsequently lose weight, liver- related abnormalities improve. Therefore, patients with chronic hepatitis C are advised to maintain a normal weight. For persons who are overweight, it is crucial to start a prudent exercise routine and a low fat, well balanced, weight reducing diet. In diabetic patients, a sugar- restricted diet should be adhered to. A low cholesterol diet should be followed in those with hypertriglyceridemia. In individuals with NASH who are of normal weight, a low fat diet may be advantageous. It is essential that patients consult with their physician prior to the commencement of any dietary or exercise program.
PROTEIN AND HEPATITIS C
Adequate protein intake is important to build and maintain muscle mass and to assist in healing and repair. Protein intake must be adjusted to one's body weight. Approximately 0.8 grams of protein per kilogram of body weight is recommended in the diet each day. Therefore, protein intake should be between about 60 - 120 grams a day in patients with hepatitis C, unless a complication of cirrhosis known as encephalopathy occurs. Encephalopathy is an altered mental status. The exact cause is not fully understood and is probably multifactorial. It has been shown that restriction of the diet of animal protein and maintaining a total vegetarian diet, helps reverse this condition and improve mental capacity.
SODIUM AND HEPATITIS C
Advanced scarring of the liver [ cirrhosis ] may lead to an abnormal accumulation of fluid in the abdomen referred to as ascites. Patients with hepatitis C who have ascites must be on sodium [salt] restricted diets. Every gram of sodium consumed results in the accumulation of 200 ml of fluid. The lower the salt content in the diet, the better this excessive fluid accumulation is controlled. While often difficult, sodium intake should be restricted to 1000mg each day, and preferably to 500 mg per day. One must become an careful shopper, diligently reading all food labels. It is often surprising to discover which foods are high in sodium.
For example, one ounce of corn flakes contains 350 mg of sodium; one ounce of grated parmesan cheese - 528mg of sodium; one cup of chicken noodle soup - 1108 mg of sodium; and one teaspoon of table salt - 2,325 mg of sodium!
Most fast food restaurants are a no no. Meats, especially red meats, are high in sodium content, and adherence to a vegetarian diet may often become necessary. Patients with chronic hepatitis C without ascites, are advised not to overindulge in salt intake, although their restrictions need not be as severe.
copyright © 2000 Melissa Palmer, MD
Return To Home Page of liverdisease.com
DIET AND HEPATITIS C
WHAT IS THE RELATIONSHIP BETWEEN DIET AND HEPATITIS C ?
Hepatitis C is a virus that infects the liver. Up to 85% of people exposed to this virus develop chronic liver disease. Progression to cirrhosis { irreversible scarring of the liver } occurs in about 25% of individuals. While not as yet totally defined, many factors influence the rate of disease progression. Diet likely plays an important role in this process, as all foods and beverages that we ingest must pass through the liver to be metabolized.
ALCOHOL AND HEPATITIS C
Alcohol is a potent toxin to the liver. Excessive intake can lead to cirrhosis and its complications, including liver cancer. Heavy drinkers are not the only individuals at risk for liver disease, as damage can occur in even some moderate "social drinkers". The hepatitis C virus has frequently been isolated from patients with alcoholic liver disease. In fact, these patients have been found to have a higher incidence of severe liver damage, cirrhosis, and a decreased lifespan, when compared to individuals without the virus. It is suggested that the combination of alcohol and hepatitis C accelerates the progression of liver disease. The consensus statement concerning management of hepatitis C released March 1997 from the National Institutes of Health, further warned about the dangers of excessive alcohol use in patients with hepatitis C. These recommendations stressed limitation of alcohol use to no more than one drink per day. Therefore, patients with hepatitis C would be unwise to drink alcohol in excess, and total avoidance of all alcohol intake is recommended .
IRON AND HEPATITIS C
The liver plays an important role in the metabolism of iron since it is the primary organ in the body that stores this metal. The average American diet contains about 10- 20 mg of iron. Only about 10% of this iron is eliminated from the body. Patients with chronic
hepatitis C sometimes have difficulty excreting iron from the body. This can result in an
overload of iron in the liver, blood, and other organs. Excess iron can be very damaging to the liver. Studies suggest that high iron levels reduce the response rate of patients with hepatitis C to interferon. Thus, patients with chronic hepatitis C whose serum iron level is elevated, or who have cirrhosis, should avoid taking iron supplementation. In addition, one should restrict the amounts of iron rich foods in their diet, such as red meats, liver, and cereals fortified with iron, and should avoid cooking with iron coated utensils.
FAT AND HEPATITIS C
Overweight individuals are often found to have abnormalities related to the liver . Examination of liver specimens may display a spectrum of abnormalities ranging from fatty deposits in the liver,[ steatosis], to fatty inflammation [ fatty hepatitis], or even fatty cirrhosis. This condition is called Nonalcoholic Steatohepatitis [ NASH ]. It occurs predominantly in middle-aged obese women with diabetes mellitus and hypertriglyceridemia [excess fat in the blood]. However, this disease may also occur in individuals of normal weight, without other associated diseases, and can also affect men. The presence of fat in the liver can cause the liver to become enlarged and may result in elevations in liver related blood work { liver function tests [LFT's] }. The addition of NASH in patients with hepatitis C may worsen liver related blood work and physical exam. This may confuse interpretation of results and diagnosis. Controlled studies need to be done to determine if the addition of this disease worsens the prognosis of patients with underlying chronic hepatitis C. In overweight patients with a fatty liver who subsequently lose weight, liver- related abnormalities improve. Therefore, patients with chronic hepatitis C are advised to maintain a normal weight. For persons who are overweight, it is crucial to start a prudent exercise routine and a low fat, well balanced, weight reducing diet. In diabetic patients, a sugar- restricted diet should be adhered to. A low cholesterol diet should be followed in those with hypertriglyceridemia. In individuals with NASH who are of normal weight, a low fat diet may be advantageous. It is essential that patients consult with their physician prior to the commencement of any dietary or exercise program.
PROTEIN AND HEPATITIS C
Adequate protein intake is important to build and maintain muscle mass and to assist in healing and repair. Protein intake must be adjusted to one's body weight. Approximately 0.8 grams of protein per kilogram of body weight is recommended in the diet each day. Therefore, protein intake should be between about 60 - 120 grams a day in patients with hepatitis C, unless a complication of cirrhosis known as encephalopathy occurs. Encephalopathy is an altered mental status. The exact cause is not fully understood and is probably multifactorial. It has been shown that restriction of the diet of animal protein and maintaining a total vegetarian diet, helps reverse this condition and improve mental capacity.
SODIUM AND HEPATITIS C
Advanced scarring of the liver [ cirrhosis ] may lead to an abnormal accumulation of fluid in the abdomen referred to as ascites. Patients with hepatitis C who have ascites must be on sodium [salt] restricted diets. Every gram of sodium consumed results in the accumulation of 200 ml of fluid. The lower the salt content in the diet, the better this excessive fluid accumulation is controlled. While often difficult, sodium intake should be restricted to 1000mg each day, and preferably to 500 mg per day. One must become an careful shopper, diligently reading all food labels. It is often surprising to discover which foods are high in sodium.
For example, one ounce of corn flakes contains 350 mg of sodium; one ounce of grated parmesan cheese - 528mg of sodium; one cup of chicken noodle soup - 1108 mg of sodium; and one teaspoon of table salt - 2,325 mg of sodium!
Most fast food restaurants are a no no. Meats, especially red meats, are high in sodium content, and adherence to a vegetarian diet may often become necessary. Patients with chronic hepatitis C without ascites, are advised not to overindulge in salt intake, although their restrictions need not be as severe.
copyright © 2000 Melissa Palmer, MD
Return To Home Page of liverdisease.com
Saturday, April 5, 2008
HOW DO I FEEL TODAY
Recently I have the return of red marks on my legs-not really circular -they resemble the shape of pimples bu they are not on the surface. My one leg I was so sore and stiff I could not walk properly yesterday after spending quite a long time walking with my granddaughter at the Forks. I really enjoyed my day with Kira. The rash on my face that I thought would disappear after my medication actually got worse. I am seeing Dr. Kaita on Wednesday for my post treatment assessment. Then Deidre is seeing a dentist.
My sister is coming on April 13th. So I am looking forward to seeing a group of relatives coming for my aunt's memorial service.
My sister is coming on April 13th. So I am looking forward to seeing a group of relatives coming for my aunt's memorial service.
Monday, March 24, 2008
how do I feel
-the same
-rash on forehead still present but not as intense
-still pretty tired
-did not get emotional when I lost my keys
-remaining calmer with my daughter
-had a disappointment with the catholic church and I may search for a new church
-rash on forehead still present but not as intense
-still pretty tired
-did not get emotional when I lost my keys
-remaining calmer with my daughter
-had a disappointment with the catholic church and I may search for a new church
Friday, March 21, 2008
ending of treatment
I took my last four pills today and my last needle a week ago-48 weeks of treatment for the 2nd time since 2005. How do I feel today? Right now I feel extemely fatigued and just going about my day to day routine. Tomorrow I am taking the grand daughters to the bowling alley. My sister is coming this way to go to aunty bunny's memorial April 14th.
can't stay on line very long.
can't stay on line very long.
Thursday, March 13, 2008
On ResiliencyThe following snip was found here.www.omh.state.ny.us/omhweb/savinglives/volume2/resilience.html
Extreme Resilience
What makes a difference in determining whether someone succumbs to a threat or survives? Who lives and who dies? A recent analysis of "deep survival" examined the attitudes and behaviors exhibited by individuals caught in life and death situations in a range of adverse environments. (Gonzales: 2003) The study revealed 12 lessons for prevailing against extreme odds. Such conditions can produce what could be termed "extreme resilience", the ability to think and behave successfully in the clutch of mortal danger.
1. Perceive, believe (look, see, believe). Extreme survivors rapidly grasp the reality of their situation and acknowledge that everything good or bad emanates from within. Their life is ultimately in their grasp. They move quickly through denial, anger, bargaining, depression and acceptance very quickly.
2. Stay calm (use humor, use fear to focus). Survivors use fear, turn it into anger, and it motivates them. They understand at a deep level about being cool and are ever on guard against the mutiny of too much emotion. They keep their sense of humor and keep calm.
3. Think/analyze/plan. Survivors quickly organize, set up routines, and institute discipline. They push away thoughts that their situation is hopeless. They act with the expectation of success.
4. Take correct, decisive action. Survivors are able to transform thought into action: take risks to save themselves and others and break down large jobs into small, manageable tasks.
5. Celebrate your successes (take joy in completing tasks). Survivors take great joy from even the smallest successes. Important to sustain motivation, this attitude also prevents the descent into hopelessness.
6. Count your successes (take joy in completing tasks). This is how survivors become rescuers instead of victims. There is always someone else they are helping more than themselves, even if that someone is not present.
7. Play (wing, play mind games, recite poetry, count anything). Using deeper powers of intellect can help to stimulate, calm, and entertain the mind. It can also lead to a novel solution to the problem at hand.
8. See the beauty (remember: it's a vision quest). The appreciation of beauty can relieve stress and create strong motivations, as well as help to take in new information more effectively.
9. Believe that you will succeed (develop a deep conviction that you will live.) Survivors consolidate their personalities and fix their determination; they admonish themselves to make no more mistakes, to be very careful and to do their very best. They become convinced that they will prevail if they do these things.
10. Surrender (let go of your fear of dying). Survivors manage pain well. They practise resignation without giving up. It is survival by surrender.
viral load
It is always great news when your viral load is considered undetectable. That did not happen with me after my first 48 week treatment. Now I have had a 2nd 48 week treatment and in six months I will have results of the detectability of the virus. However I already have cirrhosis so I have to be watched quite closely.
(FROM AN ARTICLE ON THE INTERNET)
Dr. Pearlman: Unlike HIV, HCV viral copies do not directly affect a patient's prognosis and how fast disease is progressing in the liver. Remember, we are measuring blood levels, not what is happening in liver cells. HIV viral load does have a lot to do with quicker progression to AIDS. But HCV viral load does not tell you how fast hepatitis is progressing.
(FROM AN ARTICLE ON THE INTERNET)
Dr. Pearlman: Unlike HIV, HCV viral copies do not directly affect a patient's prognosis and how fast disease is progressing in the liver. Remember, we are measuring blood levels, not what is happening in liver cells. HIV viral load does have a lot to do with quicker progression to AIDS. But HCV viral load does not tell you how fast hepatitis is progressing.
Wednesday, March 12, 2008
I paid human resources the dept owed to them, my overdrafts, my lawyer and quite a big chunk to VISA. DEIDRE GOT HER MUCH AWAITED BIRTHDAY CELEBRATION. We stayed at the Canad Inn and a small group of friends came over. I rented two children theme rooms.I was able to relax. I went to the hot tub for a while. Deidre and her friends really had great fun at the pool. The next big thing is to buy a decent grocery order.
My sister is back from Mexico. Deidre may travel to Nova Scotia to see her dad this summer.
How do I feel-about the same. The stress of very small monthly income now being replaced with a reasonable income is thereby reduced.
Blood work was taken today for my hep c viral recognition and my dr. will tell me the results on April 9th.However viral load is not an indication of the severity of the liver damage.
My sister is back from Mexico. Deidre may travel to Nova Scotia to see her dad this summer.
How do I feel-about the same. The stress of very small monthly income now being replaced with a reasonable income is thereby reduced.
Blood work was taken today for my hep c viral recognition and my dr. will tell me the results on April 9th.However viral load is not an indication of the severity of the liver damage.
Sunday, March 2, 2008
GRATITUDE
The check from the insurance company arrived but has to sit in the bank for five days and then most of it is already spoken for owing to debts and payments. Thankyou God for the wisdom of the people who helped to get these benefits including the first person G.W. who got my employer to fill out all the necessary forms for my employment history. Also TH who wrote anecdotal notes about myself.
I am not on the computer a huge amount these days as I feel it is a struggle to stay focused. I have only until March 18th for my final medication-wow. Two years of teatment was quite challenging.
I am not on the computer a huge amount these days as I feel it is a struggle to stay focused. I have only until March 18th for my final medication-wow. Two years of teatment was quite challenging.
Saturday, February 2, 2008
Thursday, January 31, 2008
Wednesday, January 30, 2008
when I do not smile
when I am passively sitting I look very guant, elderly and almost mad but it is owing to the thinness of my face and the anglo saxon look.People very likely read the situation completely in error.
DR. KELLY KAITA
Dr. Kaita is currently the director of the Viral Hepatitis Investigative Unit (VHIU) at the Health Sciences Centre, University of Manitoba. The VHIU started in 1997 and over a short 5 years has grown over 400%. This unit has proven to be a National Center of excellence and is used as a framework for other units across the country. He is also a member of the liver diseases research group, and the department of internal medicine
His hepatology research focuses on viral hepatitis. Much of his work is dedicated to clinical trials involving the use of new anti-viral agents that can be used to treat viral hepatitis. The unit is also responsible for understanding the natural history of viral hepatitis in Manitoba, continuing medical education for health care givers, patient education, and public health. The main goal is to establish in Manitoba the first Canadian unit focusing on all aspects of viral hepatitis. He is also involved in several international clinical trials looking for better and more effective therapies for viral hepatitis. His unit is also responsible to oversee the management of patient's affected with viral hepatitis in Manitoba.
Dr. Kaita graduated from the University of Manitoba in 1989 and then enroled in a residency in internal medicine. This was followed with a fellowship in hepatology here and at the University of Western Ontario. For the past three years he has held a geographic full-time appointment.
His hepatology research focuses on viral hepatitis. Much of his work is dedicated to clinical trials involving the use of new anti-viral agents that can be used to treat viral hepatitis. The unit is also responsible for understanding the natural history of viral hepatitis in Manitoba, continuing medical education for health care givers, patient education, and public health. The main goal is to establish in Manitoba the first Canadian unit focusing on all aspects of viral hepatitis. He is also involved in several international clinical trials looking for better and more effective therapies for viral hepatitis. His unit is also responsible to oversee the management of patient's affected with viral hepatitis in Manitoba.
Dr. Kaita graduated from the University of Manitoba in 1989 and then enroled in a residency in internal medicine. This was followed with a fellowship in hepatology here and at the University of Western Ontario. For the past three years he has held a geographic full-time appointment.
my dr. and nurses
I forgot to mention the name of my hepatologist specialist: Dr. Kelly Kaita has been the best doctor he could be in management of my treatments and the organization of all the testing procedures. He has also written numerous letters and filled out numerous forms for insurance companies. He must be a very patient man to do all those documents and do all the other necessary pieces and portions of his job. Plus big thanks to my nurses Linda and Jackie and the organizer of appointments Jay. Sometimes going to the Health Sciences Centre is a bother but I am always treated so well there. Also thanks to all the lab teckies who drew my blood over and over and over.
Tuesday, January 29, 2008
interview
The agent interviewed me and it went well as far as I can discern. It was a very fair and non-adversarial interview.It is hard to focus on the negative descriptions of the symptoms and to be always going over them and to be explaining all the negative conditions but it had to be done.I included in my assessment the following: fatigue, lack of concentration, memory lapses, soreness in bones and joints, shortness of breath, unusual sleeping patterns, nightmares and walking and talking in my sleep because of anxiety and stress, doing tasks slowly, having family members help me with heavier chores, and that was about it.I forgot to mention a poor appetite and poor organization of food management.
Thursday, January 24, 2008
On next Tuesday I will be interviewed by an insurance agent concerning my claim but I will do it by telephone at my lawyer's office. All my other interviews of the past I had to be really up and positive and very professional. Now I have to speak about all the negative things to do with my medical situation. My lawyer will help me because sometimes I am in a fog or I get emotional. So I am sure it will progress along as it ought to in our universe.
Tuesday, January 15, 2008
I forgot to mention the way in which my tongue always feels- as though an alligator is residing in there.There is a strange heavy, dull taste and drinking lots of water does not really help. the surface of the tongue is very rough and I have to use mouthwash alot. I brush my teeth several times a day but of course my teeth are purchased teeth so perhaps that also prevents the saliva from rolling about. It is very annoying. Maybe I could eventually draw a cartoon using some of these ideas.
potential good news
My insurance company got in touch with my lawyer and they have decided to waive the lateness of the claim and proceed to look at the medical docs. of which I have files upon files. Thanks to Kirk and Jack and other members of my support group who encouraged me to proceed when I was uncertain about what to do.
Monday, January 14, 2008
Positive memories of my job at Garden Hill
-when I went to the interview the one man asked how soon I could pack
-I received a travel cheque in a timely manner to get there asap
-my vp met me at the airport right away and he drove me over the ice road
-the highschool staff was cordial and friendly and supportive
-having luch in the Home Ec. room every day was a highlight
-my junior high students gave me a hard time and then did a turn around and did very well for the final exam
-I left at the end of June and decided to come back in November and they hired me very quickly
-The Director of Education, Mr. Nelson Mckay was always a very gentle and good hearted person who treated his staff with respect and courtesy
-I have fond memories of all my students, Grade 4, Grade 2, Junior High, Senior High,
-the young students were full of life and energy and enthusiasm
- the older students were quiet and maybe too passive at times but there was always the one or two who would speak up and say what was on their mind
- the students had so many challenges because of tragedies in the community and they rallied and stood firm with each other
-other teachers were a delight to be around
-it was a pleasure to watch and listen and observe the variety of characters who came up north and no doubt I was at the top of the list
-I have to repeat once again how the highschool staff had so much fun giving me a fun time with their good natured teasing and joking and even though I did not understand the native language they always included me and I enjoyed the flow and movement of the language and I could read alot of body language
-they always used enough English when I was around so I did not feel that I was left out of the loop
-one time when I had an emotional breakthrough the school counsellor and another staff member took me aside and gave me prayers and moral support
-hey, the pay cheques never bounced
-I grew as a teacher just at that crucial time of my life when something on the horizon was going to take me away from a job I loved
-I loved the northern landscape, and the sound of the crunch on the snowy ice road, the hoar frost gently hanging on the mighty spruce and pine trees, the amazing sunrises and sunsets, the flow of the water as it moved through the seasons surrounding my island home from water to ice and then the inevitalble return to the same and yet subtly different condition and circumstance
-the beauty and horror of nature that gives birth to both joy and depression
-how I miss the north
-when I went to the interview the one man asked how soon I could pack
-I received a travel cheque in a timely manner to get there asap
-my vp met me at the airport right away and he drove me over the ice road
-the highschool staff was cordial and friendly and supportive
-having luch in the Home Ec. room every day was a highlight
-my junior high students gave me a hard time and then did a turn around and did very well for the final exam
-I left at the end of June and decided to come back in November and they hired me very quickly
-The Director of Education, Mr. Nelson Mckay was always a very gentle and good hearted person who treated his staff with respect and courtesy
-I have fond memories of all my students, Grade 4, Grade 2, Junior High, Senior High,
-the young students were full of life and energy and enthusiasm
- the older students were quiet and maybe too passive at times but there was always the one or two who would speak up and say what was on their mind
- the students had so many challenges because of tragedies in the community and they rallied and stood firm with each other
-other teachers were a delight to be around
-it was a pleasure to watch and listen and observe the variety of characters who came up north and no doubt I was at the top of the list
-I have to repeat once again how the highschool staff had so much fun giving me a fun time with their good natured teasing and joking and even though I did not understand the native language they always included me and I enjoyed the flow and movement of the language and I could read alot of body language
-they always used enough English when I was around so I did not feel that I was left out of the loop
-one time when I had an emotional breakthrough the school counsellor and another staff member took me aside and gave me prayers and moral support
-hey, the pay cheques never bounced
-I grew as a teacher just at that crucial time of my life when something on the horizon was going to take me away from a job I loved
-I loved the northern landscape, and the sound of the crunch on the snowy ice road, the hoar frost gently hanging on the mighty spruce and pine trees, the amazing sunrises and sunsets, the flow of the water as it moved through the seasons surrounding my island home from water to ice and then the inevitalble return to the same and yet subtly different condition and circumstance
-the beauty and horror of nature that gives birth to both joy and depression
-how I miss the north
I feel stress from waiting to hear the results of claims. However I feel that I am improving my eating habits despite a very invisible appetite and my daughter and I have a New Year agenda to increase the quality and volume of fruits and vegetable and sometimes I take my grandchildren swimming because I have to push myself at something.
How do I feel today- when I go to do a task such as using the computer even now I get easily irritated or anxious about simple procedures. A few weeks ago I had large red spots all over my legs at a variety of areas especially my ankles and then I had a huge, bright red rash on my upper legs, very much on the surface of the skin, raised and bumpy, I took a picture of it with my cellular phone and showed the picture of the images to my weekly nurse, then I feel fatigued after very simple errands and then there is that red bruised area in a private area which is noted in my files. The dr. reduced my meds so the spots have almost disappeared. I will see the nurse on Wednesday for more blood work and an evaluation.Also I get very emotional with my teenage daughter-Is it the disease, the meds or just parental concerns or a combination of everything.
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